Monthly Archives: July 2012

The Revision

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Ugh. I’m not even sure where to begin.

Parker is awesome. Most of the time she is extremely healthy. From time to time we have a pesky little seizure, but for the most part, things are great….

Last Fall, there were several episodes where Parker would vomit out of the blue and she would need to nap for around 45 minutes or so. We discussed this with Neurology and thought they were simple partial seizures, so we her increased medication. These episodes began to increase in frequency in January. She wasn’t having a typical shunt malfunction symptom, but I was still a little leery. I took her to the ER to have the shunt checked, just in case. It was fine.

Weeks continued and the episodes got worse. They were longer in duration and began to increase in frequency. Our Neurosurgeon wanted us to try the non-surgical path 1st as he thought she was having migraines. I felt otherwise, but was okay with not wanting to rush to surgery.

However, we had to try 3 different migraine meds over 4 months. Her symptoms were AWFUL. Parker would scream in pain for 2-3 hours every 2-3 days. My heart knew this was not a migraine. But, we had to prove this to the NSG.

Finally, on May 9, 2012, Parker got a shunt revision. She hasn’t had an episode since.

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Slacker

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So, I’m a bad blogger.

We went to visit CBR (Cord Blood Registry) in late April/early May. It was a very emotional experience for me. We got to see the actual dewar (Lucky #28) where Parker’s stem cells were stored after she was born. My eyes welled up with tears. I completely believe those 234,000,000 cells changed our paths forever.

The staff at CBR is remarkable. We got a private tour of their facility by their Founder & CEO, Tom Moore. I would recommend banking cord blood to any expectant parent. And, I would only bank with CBR. No doubt. They are awesome!

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