Monthly Archives: August 2012

Someone I know turned 4 on August 26th!






She got an Easy Bake oven and a big girl bed. Turning 4 has a lot of responsibility.




I’ve written before about how much we love Special Care. Not only do they take “special care” of our children with all abilities, you make many friends. I remember clearly the little clique that formed in the Infant Room when Parker was little. It’s been a joy watching each child grow and blossom. But, tears are rolling down my face as one of those angel faces is no longer with us. Preston was born with a different set of challenges and his first months were tumultuous. He had Jeune Syndrome and other than having a nasal cannula for extra oxygen, he ran around like any other toddler. He had a mischievous smile and was loved by many. Right before Parker had her shunt revision, he had a routine illness. This hit him harder than a typical child and he got an infection. 3 weeks later, he passed away on Mother’s Day, May 13, 2012. He had been in the PICU of the same hospital where we had P’s revision, so I visited with Preston’s Mom. It is hard to believe during one week, Special Care had 3 kids in the same hospital at the same time.

Several weeks after he passed, Parker told Jeff, “I helped Preston with his cord today at school!” It took my breath away. I’m sure it was something she had done hundreds of times before, but it was heartbreaking to know she would never be able to do that again.

Parker talks about Preston EVERYDAY. She asks why he died. She also asks about my Grandmother (GiGi to her), Snowy (our cat), and Maggie (my Mom’s dog). She is satisfied knowing they are all friends in heaven.

Today would have been Preston’s 4th birthday. Special Care had a balloon release and dedicated a memorial. There is also a stone that will be put in their garden with his very distinctive handprints that has all his classmates names on it.

God bless Preston.





Parker’s teacher texted this picture to me this week. So unbelievably gross. At our home, everyone puts all lids down. I assume she is used to putting the lid up. Except, at school, it doesn’t quite work the same.

On a sidenote, Friday was Parker’s last day at Special Care. She will start Pre-K next Thursday at Piedmont Primary. It was a sad day, and I shed some tears. Special Care has been an awesome place for Parker to blossom for almost 4 years. We have made many friends and it will be hard not to go there on Monday morning.


Google me?


Through the powers that be, I can tell how you (yes, you) arrived here (yes, here). WordPress gives me a little synopsis of the different webpages people click on to find my page. I imagine if you were a serious blogger you would really need this information. I just find it fascinating.

Today, someone searched for “Hydrocephalus stem cell infusion” and found this page. It made me wonder about the power of google. So, I typed the same thing. It brought up a newspaper article we did about a year ago.